March 2004 Monthly eNewsletter Edition
Gastroparesis Patient Association for Cures and Treatments, Inc.
G-PACT
   
   
Topics Include:

Special News:    
-
G-PACT Is Growing Again! 
-
Gastroparesis Symposium
 
-DDW News

Department News:   
Fundraising  
-Shop to support G-PACT! 
(BuyforCharity.com & Cafepress.com)   
-Upcoming FR event!     
-
Attention Pennsylvania Residents!!  
Supply Depot  
-
Depot Information

Services To Help You:   
-GP Recipe program
***NEW***
-PAL  
-Regional Support Group meetings   
-Restaurant cards

General Information:
-G-PACT Personnel List
-G-PACT Office Information
-Disclaimer       

 

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Special News

 
G-PACT Is Growing Again!
   
Once again, we are pleased to announce we have new volunteers! 
Please welcome the following new G-PACTer's:

Peg O'Neil Hansen, Regional Support Group Coordinator
Penny Bush, Public Relations Volunteer

We are please to have them aboard.  You can view all of our personnel's information here.
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Gastroparesis Symposium
   
On April 3rd, 2004 the Johns Hopkins University School of Medicine, Division of Gastroenterology will be sponsoring a Gastroparesis symposium in Baltimore Maryland.  A special Track will be held that will be geared specifically for patients.  This program aims to present the most current diagnostic and management modalities available for Gastroparesis today. Future therapies will be identified as well as discussion on how to improve quality of life for patients with Gastroparesis.

The patient track will be available via a live web cast with audience feedback on the day of the event for those who can not attend in person.  There is a registration fee for the event.  For more information please visit the website at http://www.hopkinscme.org/cme/events/gastropar04.html#top  To register please call (410) 955-3169 and don't forget to mention G-PACT to receive the special rate!  

 

We encourage you all to pass this information on to your personal physicians, as they are the ones that need to further their education on Gastroparesis.  By doing so, this will benefit you as a patient as well!   

 

We need you there to make a difference!  Send your ideas on how to make events like this more accessible to patients by writing to Veronica Pennington at vpennington@g-pact.org 

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Digestive Disease Week 2004

Digestive Disease Week (DDW) will be held in New Orleans, LA from May 15-20.  This year, G-PACT will be an exhibitor.  You can learn more about DDW by going to http://www.ddw.org/programInfo/ 

Exhibitor hours are as follows:

Sunday, May 16 12:00-6:00pm
Monday, May 17 10:00am-4:00pm
Tuesday, May 18 10:00am-4:00pm
Wednesday, May 19 10:00am-2:00pm

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Department Information

 

 

Fundraising Department
 

Shop to support G-PACT!!

 
BuyforCharity.com

Have something you need to buy?  Then sign up with Buy for Charity, and designate G-PACT
(Gastroparesis Patient Association for Cures and Treatments, Inc.) to receive the benefits!!  Buy for Charity (www.buyforcharity.com) is a company that brings the mall straight to you!  The online shopping mall has many of the most popular online stores.  Up to 35% of your purchase price will go directly to G-PACT. Shop at stores like: Barnes and Noble, Gap, 1-800 Flowers and over 350 more! 

Plus, for added ease, shop by categories!  There is nothing extra charged to you for shopping and it's free, so sign up today!!!  Take your online shopping spree one step further, and support a worthy cause while you're at it! 

   

Cafepress.com
Looking for G-PACT gear?  Look no further!  Check out G-PACT's CafePress store!  You can find all sorts of items, and what you buy supports G-PACT!  $5 of every item will be given to G-PACT.  Remember CafePress next time you need to buy a present for someone.  Not only does your purchase support G-PACT financially, but you will bring awareness to the public by wearing our logo!  Ready to shop?  Go to http://www.cafeshops.com/gpact 
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Upcoming FR event!

Our Fundraising Department will soon be launching a new event to raise funds for G-PACT.  Quality First Aid products, items everyone can use, will be sold and G-PACT will earn up to 50%!!  Please look for details to come in the near future!

 

Need information about our Fundraising Department?  Email fundraising@g-pact.org or call (888) 820-0729 Ext. 84! 

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Attention Pennsylvania Residents!! 
 

Fairview Township, located in South Central, PA , will be holding a Celebration Day on Saturday June 12, 2004. They are focusing on various organizations and services available to township citizens. Each organization is given a booth free of charge for the event, and we can do whatever we would like in order to entertain people attending the event, and draw attention to our organization in the process! This will be a really really fun event, and a great way to raise money and increase awareness in the community in general! 
 
Suggested ideas include bake sales, crafts, clowns, magic, drama, entertainment of all kinds, face painting, etc. I will once again, spray my hair purple, green, and red like I did for my 2000 b-day party :o) The works!  We just provide the materials for what we want to do and go for it! We get 100% profit on everything. The Fairview Township Office will not take any of the money we raise.  
 
You can do almost anything from "womaning" the booth for a little while that day, to baking or making things to sell, giving us ideas, publicizing the event, and donating any supplies or services. Please consider using your great ideas to support G-PACT in this way! If you start cooking now, you may be done by the 12th of June, although some of the food will be stale by the event! That's why we need more than one or two chefs, so please get your loved ones involved in that, and consider long distance factors too with shipping food items!  :o) But there's more to life than food (as GPers know!) so crafts, cool services for kids, and other ideas will give us a big boost and a way to get everyone interested involved, and be comfortable in the process. 
 
If you would like to help G-PACT make this event even bigger than it already is for this community, please contact Carissa, President/Webmaster, at bluelighteningjeep@earthlink.net or 1-888-820-0729 x 82 for further information.

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Supply Depot
 

Depot Information

 
Our Supply Depot is available to assist patients who need medical supplies who can not afford it, or run out between monthly paid benefits.  If you or someone you know, needs any kind of supplies as relating to Gastroparesis, please contact supplydepot@g-pact.org or (888) 820-0729 Ext. 87 for more information.  If we don't have the item in stock, we'll try our best to find it for you!  Alternatively, if you have items laying around that you don't need, contact us and we'll take them for you!  You can help others too!

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Services To Help You!

 
GP Recipe program ***NEW***

 

Do you have a favorite recipe that works for you and your Gastroparesis?  Then share it!  G-PACT has just launched a new service where patients can submit recipes to be shared with everyone.  If you're interested in sharing go to http://www.g-pact.org/recipesubmit.htm  Your recipe will then be added for everyone to view and try for themselves!  To view submitted recipes, go to http://www.g-pact.org/recipes.htm 

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PAL 
 

The Patient Awareness Liaison Program (a.k.a. PAL) was launched in August 2003. This is a program for Gastroparesis sufferers, who have questions about this illness, need someone with an attentive ear to listen, or who may need information for handling an insurance denial. This is an excellent way to offer support and answer questions for Gastroparesis sufferers and family because it offers a personalized and precise support for those who use the service. G-PACT provides five 1-800 numbers* for callers to use when in need of support

 

If you are in need of individualized assistance or support, you will find information on each of the active volunteers on the website and in the monthly e-mail newsletter.

 
Guidelines and additional information about this individualized, toll-free support network is available on our website at http://www.g-pact.org/palprogram.htm

 

*G-PACT would like to thank Medtronic for sponsoring this very important program!

 

Current PAL Volunteers:
 
Name: Jo F
-Location: Detroit, MI
-Age: 50
-GP History: Diagnosed with gp in 3/02, but was sick for years before that
-Areas of experience: diet, medication, treatment options
-Marital/Family Status: Married, two children, age 23 and 10
-Time Zone: Eastern
-Available hours: 4-7 PM M-F, 9pm-1am M-F
-Toll Free: 1-866-58G-PACT
 
  
Name: Bobbiejo W
-Location: Louisville, Kentucky
-Age: 23
-GP history: Symptoms began to become severe after a take down of a Nissen fundoplication in June 2002.  Diagnosis confirmed in November of that year and gradually worsening over time such that not since able to take anything by mouth.
-Areas of experience: Nissen Fundoplication, Balloon dilatation of esophagus, aperistalsis of esophagus, GERD, Enteral feedings and J-tube, drainage and G-tube, Enterra therapy (pacer) by Medtronic, pH Bravo, Mamometry
-Time Zone: Eastern
-Available hours: 12:00pm-2:30pm Monday-Saturday 
-Toll Free: 1-866-59G-PACT

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Regional Support Group meetings
 
Currently, a local support group meeting is available in Orlando Florida!  Please contact Lila for more information at llitter@g-pact.org 

 

Interested in holding a meeting in your area?  Contact our NEW Regional Support Group Coordinator, Peg at phansen@g-pact.org for more information.
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Restaurant cards  
 

G-PACT has created personalized restaurant cards in the size of business cards for all people dealing with gastroparesis. They can be used at restaurants when a GP patient needs to order a meal in a smaller portion. These cards request that people with GP be allowed to order off the child or seniors menu, or share a dinner with another customer.* This help patients reduce the cost of meals and amount of wasted food they cannot finish. They are free to anybody with gastroparesis. Just send an SASE (Self Addressed Stamped Envelope) to the following address to request your card. Please include your name so we can personalize it for you. If you lose your card, we will replace it. We have received excellent responses about this program!

       

G-PACT Ohio Office

P.O. Box 674

Bellefontaine, OH  43311-0674

 

Because of the overwhelming response, your card will be sent within 2-3 weeks of being received.  If you have any questions please contact Veronica at vpennington@g-pact.org

     

* G-PACT can not guarantee the acceptance of the card.

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General Information

       

G-PACT Personnel List

        

President/Webmaster

Carissa Haston

chaston@g-pact.org

(888) 820-0729 Ext 81
 

Supply Depot Manager

Sherri Milburn

smilburn@g-pact.org

(888) 820-0729 Ext 87

   

Vice President/Financial Officer

Veronica Pennington

vpennington@g-pact.org

(888) 820-0729 Ext 82
 

Volunteer Coordinator

Jo Fick

jfick@g-pact.org

(888) 820-0729 Ext 88

    

Administrative Assistant

Lila Litter

llitter@g-pact.org

(888) 820-0729 Ext 83
  

Board of Director

Ed Ahrens

eahrens@g-pact.org 


  

Fundraising Director
Toni Brubaker 

tbrubaker@g-pact.org 
(888) 820-0729 Ext 84
 

PAL Volunteer
Bobbiejo Winfrey 
bwinfrey@g-pact.org
 
 
 
  

Fundraising Director

Stephanie Cselle
scselle@g-pact.org
(888) 820-0729 Ext 84 
  

Pubic Relations Volunteer
Penny Bush     
pbush@g-pact.org
 
 
 

Public Relations Director

Carey Mamich

cmamich@g-pact.org

(888) 820-0729 Ext 85
   

Regional Support Group Coordinator
Peg O'Neil Hansen    
phansen@g-pact.org
 
 
 

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G-PACT Office Information 

       

Street Address: Street Address:
G-PACT
702 Winebary Circle
Lewisberry, PA 17339

G-PACT Ohio Office

109 E. Spring Ave.

Bellefontaine, OH  43311

          
Mailing Address: Mailing Address:
G-PACT
P.O. Box 197
Lewisberry, PA 17339

G-PACT Ohio Office

P.O. Box 674

Bellefontaine, OH  43311-0674

      
Phone: Phone:
(888) 820-0729 Ext 81
(717) 938-2538
(717) 938-3174 Fax
(888) 820-0729 Ext 82
(937) 592-3095
(937) 292-7197 Fax

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Sincerely,

Your G-PACT Team:

Carissa, Veronica, Lila, Carey, Ed, Sherri, Jo, Toni, Stephanie, Bobbiejo and Peg

 

 

 

 

 

Please read our disclaimer below.

You have received this newsletter either because you requested it, or because someone you know thought you would be interested. If you do not wish to continue to receive these updates, please e-mail thepact@g-pact.org and ask to be removed from the mailing list. You may also use that address if you are receiving this newsletter as a forward from someone you know and would like to receive it directly from us. If you would like to be added to receive our quarterly newsletter through US mail, please send us your name, mailing address, and reason for interest in G-PACT (patient, doctor, and friend of GPer, med student, etc). The information in this newsletter is intended to be used for information only and should not be used as a basis for diagnosis or treatment of Gastroparesis. Follow the advice of your physician. G-PACT does not discriminate

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