It all started 3 1/2 years ago when I had terrible stomach pains, heartburn, back pains, nausea, you name it. At first I thought it was a stomach bug but when it didn’t go away after a week I went to a Gastro Dr. who quickly said it was “heartburn” but he wanted to do a colonoscopy. I had that done and it was all clear. He dismissed me. The constant pains never went away, always throwing up, I was miserable. Since then, I went through 6 or 7 more Gastro doctors, all of them sending me for an endoscopy.
Over the course of the last few years I have been told I have very large stomach ulcers, gastritis and had my gall bladder removed. None of these doctors ever did anything to help me. The most recent Gastro dr. sent me for the stomach emptying test and it was finally confirmed that I had Gastroparesis. But, there is nothing to help me. I live on alka seltzer, can’t eat most fruits and vegetables, have to avoid fiber; basically anything that is good for me. They tell me to stick with a liquid diet–I try and I’m starving–I just can’t do it!
Some months I throw up every single day, other months maybe once. There is no rhyme or reason to it. Gastroparesis has led to extreme anemia and extremely low hemoglobin. I have had to get several blood transfusions and iron infusions. (it’s because I can’t eat right). I now know when I start feeling weak, get chest pains and pain in my left arm (sounds like a heart attack), that I need to see the Hematologist ASAP! My blood pressure has gone as low as 89/50! The Hematologist says extremely low hemoglobin can cause a heart attack! Taking iron supplements either do not digest or if in liquid form I cannot go to the bathroom. The last procedure I had via an endoscopy was the DR. stretched the opening so food could pass through easier since the opening had become like a pinhole from not digesting food over these years. This has helped to some degree but I still get regular killer stomach aches no matter what I eat or drink and I never know when I will throw up and for how long. It’s an ongoing struggle.