My name is Carley Guerin. Seven years ago I was diagnosed with idiopathic gastroparesis as a result of a bad medication combination. About every year since then, I’ve spent at least ten hospital visits. Needless to say, the bills racked up, even with good insurance.
In August of 2016 I had the gastric pacemaker implanted and immediately saw an improvement in my symptoms, being nausea, vomiting, and abdominal pain. In 2018 I moved to California and got all new doctors, as well as a pain management doctor. That changed my life for the better. I’m on a dozen medications total, some being anti-psychotics because I also have schizophrenia. Yes, I know. I really lucked out medically. 🙂
This year I decided that my disease progression was getting too extreme. The hospital visits increased, I was getting inpatient for days at a time and there were just no answers. I talked to my gastroenterologist and he referred me to a surgeon, and this surgeon had two options for me. Pyloroplasty, or a gastric bypass. In august this year (2021) I got the pyloroplasty and spent a week in the hospital. Within a week I was back in the hospital. My surgeon came to visit me and we decided to go ahead with the gastric bypass surgery. For two weeks I was having great results, until not long ago where I was back in the hospital. It truly is an endless battle.
I’m on a liquid diet still, and boy oh boy do I miss pizza! It hasn’t been easy, I just got out the hospital a few hours ago. I spent a lot of time crying, wondering why things weren’t working out for me. I prayed. And I don’t usually pray. I didn’t sleep at all last night because of my discomfort. I hope to one day decrease my medication intake, but for now its okay. I have a lot of work cut out for me but I don’t give up easily. I’ve definitely learned how to be resilient in the face of hardship. I am 27 years old, and I’m hoping that my recovery will go smoothly from here on out. Thank you for listening to my story.