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  • OUT OF SPITE: Living With Gastroparesis: Support Groups, Mental Health & Self-Advocacy | Bryan’s Journey Part 2

    After receiving a gastroparesis diagnosis, the journey doesn’t end, it changes.
    In Part 2 of this conversation, Sam and Tammy dive into one of the most important aspects of living with chronic illness: patient advocacy. Tammy shares how her own experiences navigating the healthcare system inspired her to become a stronger advocate, not only for herself but for others living with gastroparesis and chronic illnesses.
    They talk about why self-advocacy is an essential skill, how patients can become active participants in their care, and why asking questions can lead to better health outcomes. Tammy also shares practical advice for educating yourself, understanding treatment options, and using trusted online resources to make informed healthcare decisions.

  • NUTRITION: SIBO and Gastroparesis: The Truth About Diet, Food Triggers & Nutrition

    What should you eat if you have SIBO and gastroparesis? In this episode of Spoonful of Spite, Sam sits down with GI dietitian Stephanie Mendez to break down the complicated, and often confusing, world of nutrition for SIBO, gastroparesis, and chronic digestive symptoms.

    Stephanie shares her journey into GI nutrition and explains why there is no single “SIBO diet” or gastroparesis diet that works for everyone. They discuss the differences between the low FODMAP diet and low fermentation diet, how gastroparesis changes the way patients may need to approach meal size and timing, and why individualized nutrition plans are so important. 

    The conversation also dives into elemental diets and using medical food like mBIOTA, probiotics, constipation, symptom tracking, food triggers, and dietary trial and error. Sam and Stephanie discuss why restrictive diets can sometimes create additional challenges for people with chronic GI conditions and why working with a knowledgeable GI dietitian can help patients make changes more strategically and safely.

    They also explore the emotional toll of constantly trying to figure out what foods your body will tolerate, and the importance of having support from healthcare professionals and the chronic illness community along the way.

    Disclaimer: This episode is for educational and informational purposes only and is not a substitute for individualized medical or nutrition advice. Dietary changes, including restrictive or elemental diets, should be discussed with an appropriate healthcare professional.

  • PODCAST: Beyond the Vagus Nerve: What’s Coming Next for Zenowell taVNS

    What’s new with Zenowell taVNS? In this episode of Surviving Out of Spite, Sam sits down with Jane to explore the latest Zenowell device and app updates, including the brand-new Digest Mode and Focus Mode; and what these features could mean for people living with gastroparesis, digestive symptoms, stress, and gut-brain health.

    Jane shares a behind-the-scenes look at how these new features were developed, how patient and user feedback influences Zenowell’s ongoing innovation, and how breathing techniques have been incorporated into the app to support relaxation, concentration, and nervous system regulation.

    They also chat about the new Mobi Band, how wearable health technology can help collect more comprehensive data, and how integrating information from multiple health devices could eventually provide users with a more complete picture of their health.

  • PODCAST: Gastroparesis & Protein: Finding Nutrition for Sensitive Stomachs

    Finding a protein source that works with a sensitive digestive system can be challenging. In this episode, Jack, founder of Drink Wholesome, shares the story behind creating a protein powder designed for people who struggle with digestive issues, food sensitivities, and dietary restrictions.

    Sam and Jack discuss why many traditional protein powders can be difficult to tolerate, the importance of simple ingredients and minimal processing, and how listening to customer experiences helped shape the evolution of Drink Wholesome’s products. From early product development challenges to creating new flavors designed with specific needs in mind, this conversation explores the future of more personalized nutrition.

    For many people living with chronic digestive conditions, nutrition is about more than just choosing healthy foods;  it’s about finding options that their bodies can tolerate. 

  • Dating with Gastroparesis & Chronic Illness | LIVE Q&A & Panel Discussion

    Dating while living with gastroparesis or a chronic illness can bring unique challenges — from deciding when to share your diagnosis, navigating symptoms on dates, communicating your needs, and finding someone who understands your journey. Join G-PACT for a LIVE Q&A and panel discussion: “Dating with Gastroparesis & Chronic Illness” as we have an honest conversation about relationships, vulnerability, connection, and what it means to navigate dating life while chronically ill. Patients and community members are invited to join the conversation and participate in real time. Bring your questions, share your experiences, and connect with others who understand what it’s like to navigate life, love, and chronic illness. Whether you are newly diagnosed with gastroparesis, have been living with chronic illness for years, or are supporting someone on this journey, this conversation is for you.

  • EVENT: Dash N’ Smash!

    A virtual run/walk hosted by the Gastroparesis Pie Face Challenge

    The Dash N’ Smash is a virtual run/walk hosted by the Gastroparesis Pie Face Challenge. The purpose of this event is to inspire hope, raise awareness, and fundraise for those battling Gastroparesis.

    Participants are invited to run or walk at their own convenience, choosing when, where, and how far they want to go. After completing their distance, participants are encouraged to take on the #GPPieFaceChallenge as a fun way to “cool down.”

    There is no registration fee to participate. However, we kindly ask that you consider making a donation to G-PACT, a 501(c)(3) nonprofit organization that supports individuals living with Gastroparesis and other digestive tract paralysis conditions. For example, $20 per mile.

  • PODCAST: Chronic Illness & Identity: Who Are You After a Life-Changing Diagnosis?

    Living with chronic illness can change everything; including how you see yourself, your future, and your place in the world.
    In this conversation, Sam and Deanna dive into the realities of living with chronic illness and rare disease, exploring how diagnosis can reshape identity, mental health, relationships, and everyday life. They talk about the ongoing process of understanding an illness, adapting to a life you didn’t necessarily choose, and finding strength in the uncertainty.
    They also discuss the importance of community, patient advocacy, resilience, and sharing your story; and how connecting with others who truly understand can make chronic illness feel a little less isolating.
    If you’re living with chronic illness or rare disease, we hope this conversation reminds you that your experience matters, and that there is power in finding people who understand.
    Don’t forget to like, subscribe, and share this video to help connect more patients, caregivers, and advocates with the chronic illness community.